Our Beautiful Butterflies - Take 4February 16, 2015
Lily Grace - 3-1/2
Abbey - 3
Ivy - 4-1/2
Taylor - 14-1/2
Taylor was diagnosed with Turner Syndrome at birth.
Sierra is 14 years old now, she has mosaic turner syndrome. She was born on her due date and spent 3 weeks in the NICU due to breathing and feeding problems. She was diagnosed until just before her fourth birthday (her small stature was blamed on other medical conditions) and started growth hormones soon after. Sierra is our miracle girl, and strong willed which has helped her overcome many medical problems. Sierra is very social and loves to make new friends.
Juliana was born a month early on June 2, 2011 after a very touch and go pregnancy where we were told she would not survive as she had several heart defects, a large cystic hygroma and fetal hydrops. She had open heart surgery at U of M Motts Children's Hospital in Ann Arbor, MI on June 6, 2011. She had a rough recovery but was able to come home at 5 weeks old. She has been home ever since. She is now 3 1/2 years old and very active and energetic. She has a hilarious personality and her favorite people are her older brother and younger sister. Her favorite TV character is Curious George and of course she is an Elsa fanatic from Frozen. She attends 3 yr old preschool and loves it.
I thank God for Juliana everyday, her being alive is nothing short of a miracle.
Zoe Grace - 4
Zoe was diagnosed with classic Turner Syndrome (45,X) shortly after birth. During the pregnancy, the hospital detected a defect in her umbilical cord that affected her growth. That led to a chromosome screen after she was born, despite Zoe showing virtually no signs of TS, except a high, arched palate.
So far, she has grown well and been very healthy except for problems with her ears, corrected with tubes at age 3. She does struggle with developmental delays and is still learning to speak clearly. She loves music, animals, counting and ABC's. She also has an incredibly good memory.
Zoe is a huge blessing and charms everyone she meets with her sweet spirit and joyful smile.
Emma was born June 25, 2011, and is now a 3.5 year old active sweet girl. Emma has classic Turner Syndrome that was diagnosed in utero. We always say it is just a diagnosis and does not define her or prevent her from anything she wants to do! She loves participating in ballet, tap and has just started karate! She currently attends a special ed pre-k for speech and other minor delays. She loves playing with her friends at school and is looking forward to attending both a regular 1/2 day pre-k along with her special ed one during the next school term. Emma adores her sister, Erika. She is a miracle that everyone loves at first sight
Kessleigh - 4
Kessleigh was born in October of 2010, she was diagnosed at birth with classic TS. She is now a stunning 4 year old. Kessleigh, like most other TS girls, is incredibly small for her age. She has been hospitalized a total of 13 times and has had one surgery. She was born with one Kidney, and that kidney is abnormal. She takes a nightly growth hormone injection as well as a preventative antibiotioc. She is loud, caring and very smart. She is our miracle girl.
Emma A - 3
Emma now 3 years old was dx with Classic TS at birth. I have to say she’s a handful but love her to pieces. Her personality has changed completely she’s more demanding but sweet at the same time. She has been on GH for 2yrs now. She has had a couple of ear infections and 2 sets of tubes. This past summer she had her adenoids remove to help with the ear infections and its working. We currently see Endo and ENT at Lurie Children’s Chicago TS Clinic which is going great. She is always hungry and has so much energy but I blame it on the GH. Loves her dolls especially queen Elsa and Princess Anna. We are still working on getting her potty train. Last year around this time she could only say her name and a few words now she can’t stop talking and singing.
Madi - 13